Living Rare, Living Stronger is coming to THREE cities in 2026!

We can’t wait to connect and learn with rare disease communities across the country. More details coming soon!

Make Connections, Build Community

The National Organization for Rare Disorders (NORD®) is proud to convene people living with a rare disease and their families through the Living Rare, Living Stronger® forum.

In 2025, we offered two opportunities to engage in candid dialogue around difficult topics, acquire tools for self-advocacy, and connect to much-needed local resources.

Each day-long forum featured conversations and education designed to help you navigate life with a rare disease or as a rare caregiver. We hope to see you again in 2026. Stay tuned for details!

An Unforgettable Year of Learning, Community, and Hope

Thank you for joining us at our 2025 Living Rare, Living Stronger NORD Patient and Family Forums in Georgia and Wisconsin! With powerful keynote speakers, dynamic educational sessions, and meaningful opportunities to connect, each forum delivered moments of inspiration and belonging that will be cherished forever. If you missed the forums, we hope to see you in 2026! You can catch up on the highlights from Georgia and Wisconsin in our blog posts.

Subscribe to Stay Informed!

Name(Required)

Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at [email protected]
Media Inquiries: [email protected]